Webinars

The Intersections of Data Security, Privacy, Confidentiality, and Compliance in Digital Health and Mobile Health (mHealth) Research (recording) 
Date: Friday, March 29, 2019
Time: 7:30 a.m. -8:30 a.m.
Location: Cancer Institute      Floor: 10th                Room 1017 (Strauss McCaskill Center)

Description: The session will provide a basic introduction to the concepts, challenges, and opportunities with digital and mHealth research. 

Objectives:

  • Provide participants insights into the range of digital and mhealth technologies and their potential
  • Discuss privacy, security, and compliance issue in mhealth research
  • Mobile app game designed to assist children with understanding research so they can provide informed assent
  • Review strategies for conducting and reviewing mHealth research studies

1.0 CRS Elective Credits

MyCompass Course ID: 1963-0247

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What Do Patients Want: Does Majority Rule?   (recording) 
Date: Friday, April 19, 2019
Time: 7:30 a.m. -8:45 a.m.
Location: Cancer Institute      Floor: 10th                Room 1017 (Strauss McCaskill Center)

Description: There has been a welcome, yet sometimes complex move towards including patients and families in the process of clinical research. 

Objectives:

  • Discussion on sources of data and input regarding what patients want
  • Summarize key findings on what patients want
  • Provide a patient’s perspective of the findings and how the findings resonate with the patient’s experience
  • Address issues and concerns around minority and underserved populations, as well as the impact of data sources on non-participating populations

1.25 CRS Elective Credits

MyCompass Course ID: 1963-0249

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Public Health Emergencies, Research, and Bioethics (recording) 
Date: Friday, April 26, 2019
Time: 7:30 a.m. -8:45 a.m.
Location: Cancer Institute      Floor: 10th                Room 1017 (Strauss McCaskill Center)

Description: The World Health organization defines a public health emergency as an occurrence or imminent threat of an illness or health condition, caused by bio terrorism, epidemic or pandemic disease, or a novel and highly fatal infectious agent or biological toxin, that poses a substantial risk of a significant number of human facilities or incidents or permanent or long-term disability (WHO/DCD, 2001).” 

Objectives:

  • Examine the application of bioethics in the context of research being conducted as part of the resp0onse to a public health emergency, such as the recent Ebola epidemic, or a future epidemic/pandemic public health crises that emerge as a result of natural emergencies
  • Discuss experiences and/or research related to human subjects’ protections during public health emergencies

1.25 CRS Elective Credits

MyCompass Course ID: 1963-0250

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Navigating Uncertainty: Research With Undocumented/Unauthorized Immigrants (recording) 
Date: Friday, May 24, 2019
Time: 7:30 a.m. -8:45 a.m.
Location: Cancer Institute      Floor: 10th                Room 1017 (Strauss McCaskill Center)

Description: Institutions in states that have a high number of undocumented/unauthorized immigrants often review IRB submissions requesting to enroll this vulnerable population, which lies outside the scope of vulnerable populations named in the code for federal regulations.

Objectives:

  • Discuss and provide case examples of protocol applications proposing to enroll undocumented and unauthorized immigrants
  • Apply ethical standards to research involving undocumented students
  • Explore strategies for review at all levels, with emphasis on full committee review
  • Engage audience members to share their own ideas, experiences, and best practices for approving protocols involving undocumented and unauthorized immigrants

1.25 CRS Elective Credits

MyCompass Course ID: 1963-0251

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Is Misconception Always a Misconception? (recording) 
Date: Friday, May 31, 2019
Time: 7:30 a.m. -8:45 a.m.
Location: Cancer Institute      Floor: 10th                Room 1017 (Strauss McCaskill Center)

Description: Avoiding therapeutic misconception in research has long been appreciated as an important concept.   the premise being that research is not care and distinction between the two is important for the research design, as well as for the understanding of the participant(s).

 

  • Is the boundary between research and clinical care eroding?
  • Are participant expectations changing?
  • Do researchers assume new responsibilities for providing or referring a participant to clinical care?
  • What is the effect on recruitment strategies when there is promised benefit?
  • What should be included in informed consent?

1.25 CRS Elective Credits

MyCompass Course ID:1963-0252

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